Living Labs for
Liver Cancer Care
Improving care experience and quality of life
through research and patient voices
HOW TO PARTICIPATE IN 4 STEPS
1
Read and sign the consent form
We explain the project and how we protect your data. You sign online, through a short Microsoft Forms page.
2
Answer the entry questionnaire
About 10 minutes, confidential. Your answers already help our research.
3
Receive your invitation
If you wish to do more, we will contact you with a date and a link.
4
Take part your way
Join a small group workshop (1.5–2 hours, online or in person) or choose a one-to-one interview. Always in your language.
WHO ARE YOU? FIND YOUR WAY TO TAKE PART
I am a patient, survivor, carer or family member
Living with liver cancer or caring for someone who does makes you the expert we need. Tell us what really matters: symptoms, emotions, daily life, and how care could be better.
I am a healthcare professional or manager
Surgeons, nurses, anaesthetists, managers, procurement teams: help us understand what makes new technologies like radiofrequency-assisted surgery safe, usable and sustainable in real hospitals.
I am a researcher or represent an organisation
Patient associations, research groups and institutions can help spread the word, co-moderate activities or discuss findings. Explore the evidence behind each topic and get in touch.
HIGHLIGHTS
UPCOMING ACTIVITIES + TAKE PART FROM YOUR COUNTRY
| DATE | ACTIVITY | LANGUAGE | WHO IT IS FOR | STATUS |
|---|---|---|---|---|
|
29·07·2026 |
Workshop – Quality of life & patient experience (with patient associations) |
Spanish |
Patient association representatives |
Upcoming |
|
23·07·2026 |
English |
Patient-information experts |
Upcoming |
|
|
21·07·2026 |
Interview with an anaesthesiologist – implementation of surgical innovation |
Spanish |
Anaesthesiology |
Completed |
|
16·07·2026 |
Workshop – Usability & acceptability of CoolingBIS |
Spanish |
Nurses |
Completed |
|
23·06·2026 |
Spanish |
Patients & carers |
Completed |
|
|
16·06·2026 |
Spanish |
Patients & carers |
Completed |
|
|
26·05·2026 |
Spanish |
Liver surgeon |
Completed |
Can’t join a workshop? Take part from your country
You don’t need to attend a group session to contribute. Depending on your country and availability, you can:
1) Have a one-to-one online interview at a time that suits you.
2) Join a small group conversation
3) Send a written contribution online
Always in your language, always confidential. Activities run in Spain, France, Greece, Italy, Poland, Slovenia and Switzerland.
ABOUT LIVING LABS
Living Labs, a key activity of the LIVERATION project, are born from the commitment to improve the care experience and the quality of life of people living with liver cancer.
Our aim is to identify gaps and needs of patiends, carers and professionals, prioritize them, and work towards solutions that contribute to better, more person-centred care experiences.
Participants
Patients, carers and family members sharing their experiences.
Professionals
Healthcare
professionals and experts involved.
Countries
Workshops, interviews and other activities across Europe.
OUR APPROACH
We aim to generate valuable knowledge in three main thematic areas that can help improve the care experience for people living with liver cancer: Quality of Life, Cance Care Experience and Adoption of Innovation
We listen
We listen to patients and carers and collect their experiences.
We understand
We analyse insights to identify needs and opportunities
We co-create
We co-create solutions with patients, carers and experts.
We make and impact
We turn ideas into real-world improvements in liver cancer care
THE RESEARCHERS BEHIND
The researchers conducting this project are part of the Avedis Donabedian
Research Institute in collaboration with the following institutions:
RESOURCES
EUROPEAN PROJECT
Project framework
This project is part of a larger project entitled “Unraveling the Impact of Radiofrequiency in liver surgery: the key to decrease local recurrence” (Liveration), an European Union-funded Horizon project within the Mission on Cancer gramework (Grant Agreement No. 101104360).
Want to participate?
Your experience can help shape better liver cancer care for everyone.
Alternatively, you can write to us by email at the follow email address:
amelo@fadq.org
alongan@fadq.org
You can consult our privacy policy here.